Radical Advocacy starts with meeting our own needs and then we can help our communities.
Ways to Manage & Reduce Brain Fog in Chronic Fatigue Syndrome
Brain fog accommodations for ME/CFS—pacing mental work, reducing cognitive overload, and using Wonderbooks or library audiobooks to read more easily.
Finding the Right Compression Garments for POTs and Autism
Living with POTS can be challenging, particularly for individuals who are autistic. Managing symptoms often requires wearing various types of compression garments, which can exacerbate sensory sensitivities. Finding suitable fabric and levels of compression is crucial, as comfort impacts quality of life. Overall, it’s vital to prioritize mental health while managing physical symptoms.
“Sick Nurse:
A neurodivergent nurse embarks on writing a book about her experiences with Long-Covid and multiple chronic illnesses, blending memoir, poetry, and self-help elements. Designed to be disability-friendly, it will feature shorter chapters and space for reader engagement. This journey represents both a challenge and an opportunity for personal accountability.
Navigating Chronic Illness: Common Challenges and Community Support
The author shares insights on living with chronic illnesses, emphasizing shared community experiences like dismissal by medical providers, internalized ableism, and shifting priorities. They highlight the importance of recognizing these commonalities for better mutual support and stress that community is vital for coping and thriving amidst health challenges.
Accessible Disability Resources List
Hello, this list is meant to be a more accessible version of the PDF documents I have started under the resources page. This is an ongoing post, and as I have spoons, I will spend small chunks of time adding resources here. If you have one you love that isn’t listed here, feel free to…
Chronic Illness and Disabled Nursing
Ovarian Failure, failure as a woman. Menopause at the age of 29 years old. The time when I could have outworked any man. Suddenly, I was home, feeling ill and odd in my body. No yoga, no desire, just running hot and cold. Now at 38, Long-Covid and disability. Struggling to stay afloat, Leaning…
Transforming Nursing Culture: Embracing Disability Justice
Ableism in healthcare poses significant barriers for disabled patients and nurses. It manifests in nursing practices through dismissal of invisible symptoms, skepticism towards mobility aids, and a focus on compliance over collaboration. This blog highlights the urgent need for systemic change in nursing culture to ensure inclusive, accessible, and supportive care for all.
Being Autistic and Disabled In The Trump Era.
Autistic and disabled people are the early warning system. This essay explores fascism and disability, Trump era disability policy, and why survival is collective.
Understanding Tylenol and Lecovorin in Autism Research
The blog discusses the links between Autism Spectrum Disorder (ASD) and Tylenol use during pregnancy, presenting recent studies that show minimal risk increase. It critiques claims made by public figures, emphasizes the need for further research on treatments like Lecovorin, and urges a shift from deficit-based views of Autism to focusing on support for autistic…
How Social Media Supports Disabled Individuals
The post emphasizes the vital role of social media and online communities for disabled individuals, offering support, validation, and information. It critiques the trivialization of self-diagnosis and advocates for better accessibility in technology. The author shares personal experiences illustrating the internet’s necessity in navigating healthcare and connecting with others who understand their challenges.
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