Hello, this list is meant to be a more accessible version of the PDF documents I have started under the resources page. This is an ongoing post, and as I have spoons, I will spend small chunks of time adding resources here. If you have one you love that isn’t listed here, feel free to send it to me using this link.

National/Central Branches:

  1. National Council on Independent Living
    • “Founded in 1982, NCIL represents thousands of organizations and individuals including: individuals with disabilities, Centers for Independent Living (CILs), Statewide Independent Living Councils (SILCs), and other organizations that advocate for the human and civil rights of people with disabilities throughout the United States.”
  2. Able National Resource Center
    • “Our mission is to educate, promote and support the positive impact ABLE can make on the lives of millions of Americans with disabilities and their families.”
  3. The ARC
    • “Promoting and protecting the human rights of people with intellectual and developmental disabilities and actively supporting their full inclusion and participation in the community throughout their lifetimes.”
  4. Mobility International USA
    • “MIUSA (pronounced “my-YOU-suh”) empowers people with disabilities around the world to achieve their human rights through international exchange and international development.”
  5. Social Security Administration
  6. Hawaii Division of Vocational Rehab
    • “The Hawaii Division of Vocational Rehabilitation (DVR) works in partnership with consumers, consumer organizations led by persons with disabilities, employers, our State Rehabilitation Council, and other community partners to provide services and advocacy resulting in employment, empowerment, and equality for individuals with disabilities throughout the State of Hawaii.”

One response to “Accessible Disability Resources List”

  1. Daria DiPasquale Avatar
    Daria DiPasquale

    Thank you!

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I’m Casey-Lee

I have been an RN for over 14 years and have lived with chronic illness since 2019. While I have always fiercely advocated for my patients, I struggled to do the same for myself. I had to radically change how I viewed the medical system, adjust my expectations, and unlearn my tendencies toward people-pleasing.

Recognizing the challenges of self-advocacy inspired me to create this platform. The “radical” aspect is that we acknowledge the many systemic and personal factors that impact our community.

Many people experience multiple intersecting identities that create barriers to care. Such as being a person of color and disabled, a woman and disabled, or queer and disabled. Each requires unique approaches to self-advocacy.

Our resource hub will continually evolve to meet the changing needs of our community. I hope this space nourishes, empowers and provides practical tools for navigating healthcare as an advocate for yourself and others.

Let’s connect

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