Living Well: Nurturing Disability Pride Every Day
Daily writing prompt
What daily habit do you do that improves your quality of life?

I think the most important daily habit for me is taking my medications. Without my meds, my adhd would wreak havoc on my daily life, my heart rate would be super high and jumpy, pain would be uncontrolled, estrogen non-existent, and ultimately my functionality would be significantly reduced.

Within the new age, alternative, and just white popular culture, self-care is portrayed as bubble baths, spa days, and, recently, expensive, excessive, and often unnecessary supplements.

Of course, I do other things to maintain the quality of life I do have and to hopefully improve it. I am just choosing to highlight what is truly the foundation of my life and health while also trying to fight against the stigma that exists around medications.

Taking medications is not the easy way out, nor is it buying into Big Pharma. It also does not mean that my beliefs are too negative to “heal myself”. Taking medication means to me only one thing: I want to live and hopefully one day thrive again.

If you’re seeing my blog for the first time, hello! My name is Casey-Lee. I am 38 38-year-old Registered Nurse, Autistic woman +Adhder (AuDHDer) who happens to be disabled. Not only am I existing in a world not built for my brain, but also because of COVID-19. I got a mild-ish infection in January 2024. Initially, I improved slightly after my acute phase of disease, but began deteriorating shortly after. I have progressively worsened since.

I had stabilized in June and July, then started in August getting worse again. So every morning I wake up, go over to my pill box which has inspirational things around it and happily take my meds. Knowing that genuine holistic care of my brain and body depends on science, nature, and my consistent effort.

If you want to, comment on my post what is the most important thing for you?

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I’m Casey-Lee

I have been an RN for over 14 years and have lived with chronic illness since 2019. While I have always fiercely advocated for my patients, I struggled to do the same for myself. I had to radically change how I viewed the medical system, adjust my expectations, and unlearn my tendencies toward people-pleasing.

Recognizing the challenges of self-advocacy inspired me to create this platform. The “radical” aspect is that we acknowledge the many systemic and personal factors that impact our community.

Many people experience multiple intersecting identities that create barriers to care. Such as being a person of color and disabled, a woman and disabled, or queer and disabled. Each requires unique approaches to self-advocacy.

Our resource hub will continually evolve to meet the changing needs of our community. I hope this space nourishes, empowers and provides practical tools for navigating healthcare as an advocate for yourself and others.

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